Birdshot Society to Lobby Parliament for both Birdshot & PIC

Birdshot Society to Lobby Parliament for both Birdshot & PIC

Postby DavePIC » Sun Mar 27, 2016 6:06 pm

A message for all PIC patients in the UK.

Our friends at the Birdshot Uveitis society are making an attempt to lobby Government for access to funds for treatment. Their condition, Birdshot Chorioretinopathy has roughly similar symptoms and underlying effects to PIC.

One of the problems facing both sets of patients is that due to the fact that both these conditions are classed as ‘rare diseases’, there exists insufficient concrete evidence that certain drugs will work for these conditions and subsequently result in denial of funds. Often, this follows physicians actually recommending these drugs for treatment. This leaves the patient with two options: get treatment privately or potentially face lost vision.

Clearly, this situation on top of the devastation that comes with losing eyesight, is a very unpleasant situation for many to face.

Therefore, with this in mind, could I ask all UK PIC patients to post the name of their local MP? The intention is to put pressure on as many MP’s as possible to make a case to Government to ensure funding is available. The more numbers, the more chance of success they have.

I would stress it is only the name of the MP that’s required – your details will not be used or passed on in any form.

Thank you in advance.
Regards,
Dave.
After drinking strange and wierd potions, he became endowed with mystic powers and abilities. Unfortunately, along with these powers and abilities also came the tendency to be extremely silly.
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Re: Birdshot Society to Lobby Parliament for both Birdshot & PIC

Postby SUEUK » Sun Mar 27, 2016 8:28 pm

Hi Dave,


My M.P. is Nick Boles (con) is that all you need?
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Re: Birdshot Society to Lobby Parliament for both Birdshot & PIC

Postby DavePIC » Mon Mar 28, 2016 11:50 am

Thanks Sue - that's it!

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Re: Birdshot Society to Lobby Parliament for both Birdshot & PIC

Postby oxon2012 » Mon Apr 18, 2016 2:34 pm

Hi Dave

Hope everyone is well?

Sorry for the delay only just saw this. My MP is Victoria Prentis ( conservative north Oxfordshire)

Cheers
Jason
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Re: Birdshot Society to Lobby Parliament for both Birdshot & PIC

Postby DavePIC » Mon Apr 18, 2016 9:34 pm

Thanks Jason,

Good to hear from you.

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